ESOT Patient Inclusion Initiative
Building a community together
In the past few years, the European Society for Organ Transplantation (ESOT) has been working with transplant patient organisations throughout Europe to foster cooperation between healthcare professionals and patients and to broaden patient participation in its own activities.
During the ESOT 2019 congress, ESOT hosted a meeting of 19 transplant patient organisations from 13 European countries. The meeting served as a space to exchange experiences, identify unmet needs, and develop a plan for future initiatives. Inspired by that meeting, and under the guidance of EDTCO, ELPAT and ETAHP, we launched several initiatives aimed at listening to the needs of the patient community and building a platform of mutual understanding.
Further initiatives are planned for the upcoming ESOT Transplantation Learning Journey 2.0 (TLJ 2.0) taking place on 15-17 November 2020.
In the past few years, the European Society for Organ Transplantation (ESOT) has been working with transplant patient organisations throughout Europe to foster cooperation between healthcare professionals and patients and to broaden patient participation in its own activities.
During the ESOT 2019 congress, ESOT hosted a meeting of 19 transplant patient organisations from 13 European countries. The meeting served as a space to exchange experiences, identify unmet needs, and develop a plan for future initiatives. Inspired by that meeting, and under the guidance of EDTCO, ELPAT and ETAHP, we launched several initiatives aimed at listening to the needs of the patient community and building a platform of mutual understanding.
Further initiatives are planned for the upcoming ESOT Transplantation Learning Journey 2.0 (TLJ 2.0) taking place on 15-17 November 2020.
COVID-19: Coping with Uncertainty
The COVID-19 pandemic, with its impact on the capacity of healthcare systems to adequately care for and support the communities they serve, intensified the feeling of uncertainty that often characterises the life of transplant patients. The webinar “Coping with Uncertainty during the COVID-19 pandemic”, developed in collaboration with several transplant patient organisations, was held on April 27, 2020 and was an opportunity for healthcare professionals and patient representatives to exchange their concerns, expectations and suggestions.
COVID-19 Webinar - Coping with uncertainty during COVID-19 Pandemic
View the webinar recording to hear about the main concerns of transplant patients and transplant professionals and to learn about strategies to better cope with the uncertainty arising from the COVID-19 pandemic.
Coping with Uncertainty During the COVID-19 Pandemic Report
View the report to get an overview of the main topics discussed during the webinar.
Q&A Session I
Main topics:
Listen to moderators Anna Forsberg and Peter Carstedt address some of the recurring concerns raised by participants.
Main topics:
- Communication between patients and medical professionals during the pandemic
- Patient self-empowerment
- Reconnecting after the lockdown
Q&A Session II
Listen to panelists Giuseppe Feltrin and Marjo Lehtonen address some of the recurring concerns raised by participants.
Main topics:
- Organ donation during the COVID-19 pandemic
- Donor screening
- Donation after recovery from COVID-19
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